New Company Offers Continuous Data on Rare Patients

Leap day - also apparently known as Rare Disease Day - sees the launch of a new insights company, PatientSight, operating a subscription based platform connecting life science organizations with survey findings for rare disease patients, analyzed and displayed in dashboards.

The service, intended for users in market research, marketing, new product planning, consulting, communications and other functions, organises the patient journey by disease, treatment and brand experience, and the surveys operate continuously throughout the year allowing analysis of key insights and trends within a population. The company's founders are twenty-year life sciences insights and analytics professional Dave Muggler, formerly a Director at firms including PDI, Syneos Health and TGaS Advisors; and former Verispan / Answers Suite VP of Operations and Client Services Jason Fox.

The new company partners with sector specialist recruitment firm Rare Patient Voice (RPV), founded in 2013 by Wes Michael, which covers more than 1,500 rare and non-rare diseases and conditions in nine countries, via a community of over 145,000 people.

PatientSight President Muggler comments: 'The successful planning and marketing of new products and treatments for rare diseases requires a constant finger on the pulse of these unique patient types. Think of a patient journey study combined with an ATU tracker, with updated insights available at all times for subscribers. When we talk about agile market research, this fits the bill'.

PatientSight is based in Yardley, PA, USA, and is online at www.patientsightsurvey.com , while RPV is at www.rarepatientvoice.com .

All articles 2006-23 written and edited by Mel Crowther and/or Nick Thomas, 2024- by Nick Thomas, unless otherwise stated.